Despair

Emily's bladder infection is severe and she's on antibiotics. Unfortunately she's had a reaction to the new medication and by Monday lunchtime she was in agony. Just when Emily was flying high in her new school and things began to look wonderful for her it hits, reflex sympathetic dystrophy. I was going to capitalize those words but deleted it because that would have suggested that this disease is somehow important, that is can claim us. This week has been one of off the scale pain for Emily, a week of bed rest and frailty that's been absent for a while.

R ... Really
S ... Stupid
D ... Disease

I have a meeting tomorrow at school to declare Emily as special needs and my son recently attended a camp for kids with siblings that are chronically ill. What on earth is going on ...