Frustration across the nation

I'm not sure what's going on but Emily is back to how she was in the beginning when the medication started. Goofy and silly. Both her therapist tonight and Kelly PT noticed how much she has regressed. Right now she's around the mental age of 9 in the evenings. I'm hoping that this is just because school is very demanding and she's exhausted. Tonight she was delirious and fell asleep in her dinner. I'm seriously thinking of home schooling tomorrow so that I can observe her. Maybe it's the antibiotics for her bladder infection? When I woke Emily today I knew something wasn't right and I was shocked that she made the whole day at school. I spoke with one of her teachers early in the morning because when Emily got home last night she had forgotten where her homework was and what she was supposed to be doing so I called to ask for class notes. The teacher wasn't overly happy to be speaking with me really and wasn't sympathetic. It's the age old problem of Emily looking somewhat "normal" and people not taking the time to look at RSD closely. They assume that I'm making a big deal about nothing. This makes Emily so mad for several reasons but it's because she works so hard to overcome her pain. They make me feel like a psycho! These days I just try to except that some people will jump to this conclusion and it's mostly because I do my job well. People only except what they can physically see and with Emily other than her brace it's all inside. Both Judy and Renee who also have RSD have told me that they felt he same way and it frustrates them. You can't change this so for now we'll just deal with it, shame on them ...