Slate the puppy

Emily finally fell asleep around 4:30 am and I crawled into bed shortly after. When I woke her this morning she was sleeping with no sock on and her whole left leg (RSD leg) hanging out of the quilt. Her foot was swollen and painful to touch. She describes it like a scald. She says it feels like her foot has been dunked in boiling water over and over again. Some people think that this disease is imaginary, I've heard it more than once from people who just don't understand. I wish they could have seen her today I think they would have had a change of heart.

Early on in the disease people with RSD often get looked at psychologically and some even get told that this is an attention thing. Praise and punish you're told and then the physical signs start to arrive. First the temperature difference, it's just subtle to start then the mottled skin. Yellow toe nails follow then contracture of the toes, on and on it goes ... Add this to the chronic pain and you have quite a combination!

Today was a better day. Emily still has the little pressure sore on her ankle but with the help of some band aids provided by a special friend she could wear her brace to subway for lunch. It makes her happy when she can walk. The guys in subway were so happy to see her, it's been 6 weeks since we last had lunch there and before that it was at least 3 times a week. Today they bought MY lunch! I think I looked so bad they felt sorry for me. I have to start taking better care of myself. After lunch Emily was pretty happy so we went to Home Depot where we met a really cool guy with a 7 week old Puppy. Oh my goodness this puppy was gorgeous and he snuggled up in Emily's lap for about 20 minutes. His owner was so incredibly nice I could tell he made Emily's day actually he made mine too because I just love seeing Emily laugh.