An update

The sore on Emily's ankle is getting worse so she is totally unable to wear her brace. I spoke to Alan the brace guy yesterday and he said that whatever we do she'll always have an area of reddening because she has something against her foot. This being the case how will the brace work long term? We go to see Alan tomorrow and he's going to take a look for me to see if we can do anything to stop Emily's foot pistoning. He said that Em's foot is trying to lift out of the brace every time she takes a step and therefore causing that rubbed area. Kelly our PT mentioned putting a hinge on the brace for more mobility so I may suggest that. In the meantime Emily is back in her wheelchair out of the house.

Emily attends play therapy each Monday at the hospital. This involves acting out feelings through play and so far has been quite fun. Yesterday was difficult for Emily because her therapist touched on a difficult subject and although it's great and needs to dealt with, for the whole day and evening Emily was very low. I know that we have to go backwards to go forwards and that this will help her in the long run.

I spoke with the school yesterday and found myself ranting! I clearly have just a tad of pent up aggression LOL! A plan was outlined that because Emily was currently in her wheelchair she could return to school today pending an email from the vice Principal confirming Emily's teachers wishes. No email ... no school.

I have several debt collectors calling me for medical fees but one in particular is hounding me for $114. $114!! I told him yesterday when he called again that I would love to pay but that he'd have to join the line. I tried to remind him that this was a medical fee for my sick little girl and not my bill for Twinkies, he didn't get it LOL

I'm tired. Tom (age 9) asked me why I had dark shadows under my eyes yesterday. I told him that sleeping is a bit of a problem for me right now so he offered me his bed and told me I could use it anytime. The truth is that Emily sleeps for maybe 4 hours a night if I'm lucky and although I try to go to bed before she's fully asleep I can't rest until I know she's sleeping. I've tried, honestly. 6 months into this and I'm exhausted. I know my body can't go on like this for much longer but for now it's the best I can do. I have bills to pay, emails to return (sorry everyone), my desk to clear and the house looks really scary, it's all mounting up. I need a vacation ...