Pain

I ended up sleeping in with Emily last night because she just couldn't settle, the pain is now in Emily's feet, knees, back and arms and she's very depressed. Maybe we did to much to soon? Maybe in our quest for a normal life we over did it. RSD is so cruel because some days you can cope with the pain better than others so you push yourself to do a little more and ultimately pay the price. I watched Emily walk to the end of the pier on Saturday with her fishing pole in her hand and I wondered how long she should be out. After an hour I asked her to come back to the room and take a nap but she begged me to let her stay and fish so I did.

On the one hand as a parent with a child with RSD I have to push Emily to live as normal a life as possible. I have to encourage her to push past the pain and continue to get up for school and to do physical therapy even when she really just wants to hide in bed. I also have to know when enough is enough it's time to call it a day and take a nap. I clearly have a lot to learn.

For now Emily is with her brother watching a movie and eating air popped popcorn. I'm going to blow up the airbed so that they can hang out together tonight and have a movie marathon. I have 5 solid days of work then I get to start our summer vacation and finish painting the living room. I think having fresh colours around us will make a world of difference.