http://www.youtube.com/watch?v=JOTUzQWbmYw This is a video about RSD made by a little girl Emily's age. The video covers many of the things that we've been though including PT, rehab and medication, it also gives a really good overview of RSD itself. What it doesn't show is how much pain she's in now and how much medication she still takes. It doesn't show the effects of the medication and how a simple virus can knock her off her feet. Maybe she hasn't got that far yet. I like this video, Emily and I have watched it many times including tonight at 1:30 am. I think it reminds Emily how far she's come and gives her hope.
We've decided to make a video this weekend ourselves just for fun and also to record this time in our lives.
The results of Emily's doctors visit? She has a bladder infection. The same one that she's had for months now and we just don't seem to be able to get rid of it. This infection is causing Emily to flare so I'm hoping the antibiotics will help us lose the cane. Emily's doctor and his staff are just so nice, it's like going home to family when we visit. We are so blessed to have them, they make me feel like I'm not dealing with this alone because all I have to do is call and they do what they can to help.
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