The ramblings of a tired woman

Well, it's official the RSD has spread. I had been hoping that the new pain was muscular or a bruise or anything other than the truth. A virus maybe, a knock, a bump, a freak incident, maybe it was to much fishing, swimming or wearing of the brace did it really have to be RSD? 75% of RSD patients see some spreading and 8% get it all over their body. Just for a change can't Emily be in the small percentage that just stay the same or that go into remission??? They said stay positive and keep her moving. They told me to make sure she has a "normal" life and not to allow the pain to take away her childhood. Ignore the pain they said, praise her when she doesn't complain and put her to bed immediately if she complains and don't allow her back out again until morning even if she says the pain's gone. Punish and praise, punish and praise. I agree that Emily should live as happy a life as we can make it, oh god how I try and I strongly agree that we try to push past the pain as much as we can so that life can continue. The sad fact is that this is not a psychological disease it is a malfunction of the central nervous system. We've tried to trick it but it seems to be sneaky and unrelenting. The praise and punish thing just blows my mind. When I was given the sheet of paper with that on it in the hospital I almost spat my twinkie when I read it. Sadly it shows a real lack of understanding by the doctors. They really have no clue what they're dealing with and at the end of the day Emily is in their hands medically. They promised to revise the handout that they give people who have issues with pain. I can't allow that sheet to be given to others with RSD because in the beginning you just don't understand what's going on. Can you imagine a child in chronic pain being treated that way!!? I'm yet to find a real RSD specialist, Texas doesn't have one. I'm looking for one out of state to take Emily to. I'm also looking for a good homeopath and an acupuncturist and someone who does cold laser. All money donated into Emily's fund is going towards her treatment today and her future treatment. Thank you so much to all who have donated. Thank you also to those who have donated their time to do things to help not only Emily but also Tom and myself and lastly thank you to my friends who hang in there despite the fact that I rarely return their calls.