I remember the day that the picture below was taken. Each day was the same but on this day I couldn't stand it any more. I couldn't touch her or soothe her. I couldn't do anything that my body was aching to do so there I sat on the edge of the coffee table next to her. I decided to mark that day with a picture in the hope that it would one day show us how far we'd come.
Today a little of every day looks like this, mostly the late evening. You can only distract from the pain for so long before it catches up with her and this is usually late at night when mental stimulation is at its lowest. It is at this time that her unanswerable questions start and the feeling of panic settles into the pit of my stomach.
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