After just over 3 weeks our stint at Cooks is now over. Allow me to update you ...
Week one went smoothly. I met with many, many medical people during those first few days. All wanted me to explain in detail what's been happening with Emily since day 1. As Em was taken off to PT I met with everyone to discuss a possible plan of action. Em has a cute little room with its own bathroom and little plastic bed for guess who!! By the end of week 1 I had decorated it with a flamingo theme (Emily stands on 1 leg) to remind her how far she'd come. Emily started PT with avengence. It was very cool how they used play to distract from the chore of intense exercise, Emily thrived on it. By the end of week one she had every nurse wrapped around her finger and her leg was beginning to come down. On a pain scale of 1 to 10 Emily reached 10 most days and as the days went on it became harder to bring it down again. Monday of week 2 she was taken to surgery to place an epidural and to have Botox in her calf. From what I had read Epidurals fail to block pain in RSD sufferers but I decided to let them try, just one in case it worked and left her with no pain for a while. The plan was to place the epidural so that the pain was reduced and then the PT ladies could work Em's leg really hard to get the Botox working and therefore get her foot to the floor so that she could walk.
Week one went smoothly. I met with many, many medical people during those first few days. All wanted me to explain in detail what's been happening with Emily since day 1. As Em was taken off to PT I met with everyone to discuss a possible plan of action. Em has a cute little room with its own bathroom and little plastic bed for guess who!! By the end of week 1 I had decorated it with a flamingo theme (Emily stands on 1 leg) to remind her how far she'd come. Emily started PT with avengence. It was very cool how they used play to distract from the chore of intense exercise, Emily thrived on it. By the end of week one she had every nurse wrapped around her finger and her leg was beginning to come down. On a pain scale of 1 to 10 Emily reached 10 most days and as the days went on it became harder to bring it down again. Monday of week 2 she was taken to surgery to place an epidural and to have Botox in her calf. From what I had read Epidurals fail to block pain in RSD sufferers but I decided to let them try, just one in case it worked and left her with no pain for a while. The plan was to place the epidural so that the pain was reduced and then the PT ladies could work Em's leg really hard to get the Botox working and therefore get her foot to the floor so that she could walk.
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