Wednesday

We visited the orthonic clinic because Emily was uncomfortable in her brace all of last week. Several pressure sores appeared on her foot so it was time for a new one. Alan fitted her for a new one which involves wrapping Emily's leg and foot with the same bandage you would use if you were putting on a cast. Once it's on he moves her foot into the correct position and holds it for 5 minutes until the cast is dry and hardened. We had the choice of several different color designs (dinosaurs, swirls, butterflies, trains) but this time the choice was clear LOL it's going to be camo! It's really cool that they give kids different designs but they need to get more. Sculls or something black would be great because most teenagers love that. The old brace was heated and stretched to make room for Emily's new calf muscle! For about 10 months her left leg was withered and had no muscle tone but now we have a teeny tiny bit. If you saw her legs side by side you'd see quite a difference just like when you have a cast taken from a broken leg. The left (Sarah) is skinny and the right (Laura) is normal. We named her legs after the first month, it helped to add humor to an otherwise horrific situation.

Several phone calls followed the trip to Alan. One to the neurologist to get new doctors orders and one to the insurance company to beg them to cover some of the cost.